ASSISTANCE & RESOURCES FOR ADULT PATIENTS

Alzheimer's - Alzheimers.gov - www.alzheimers.gov

• National Organization • Alzheimer’s Association. www.alz.org or  800-272-3900
• Alzheimer’s Association/Global Resources -www.alz.org/global
• Alzheimer's Assoc. NYC Chapter. Free Programs & Service. www.alz.org/nyc  800.272.3900

Dementia - The FDNY Special Needs Group met with Dementia specialists to discuss how to help Dementia patients. To hear some advice and see the video, please click here. It is the first video in the row.​

• The Association of Frontotemporal Degeneration - FTD can present with executive dysfunction, loss of empathy, impulsive behavior and apathy. www.theaftd.org. 866-507-7222.
  • ​A Suggested Book for FTD Caregivers. "What If It’s Not Alzheimer’s?" - Gary Radin and Lisa Radin
• Lewy Body Dementia - LBD results in a decline in mental abilities often creating cognitive decline, visual  hallucinations and symptoms of Parkinson’s Disease including several movement disorders.  www.minds.nih.gov. 
  • ​​Also, visit www.lewybody.org. This is a UK based organization and has a 46 page document about LBD that might be helpful. It is available to download. 
• Korsakoff Syndrome - KS is a chronic memory disorder caused by a Vitamin B1 deficiency often resulting from long term alcohol abuse. www.niaa.nih.gov  &  www.alz.org ​
• Suggested Reading for Dementia Caregivers
  1. Today’s Caregiver - A free bi-monthly newsletter subscription; provide your email address
  https://caregiver.com click the top right corner to subscribe.
  2. Books
       A. "The 36 Hour Day"  - Nance Mace and Peter Rabin
       B.  "When a Loved One Has Dementia" - Eveline Helnick
       C. "The Caregiver’s Companion" - Carolyn A. Brent

​Eldercare - ​https://acl.gov/about-acl/administration-aging

Parkinson's Disease - The FDNY Special Needs Group met with the Michael J. Fox Foundation for Parkinson's Research. To view the video of this discussion, please click here. It is the second video in the row.
The Michael J. Fox Foundation has an informative website which gives extensive insight into Parkinson's Disease, its  treatments and medications. For more information, please visit https://www.michaeljfox.org/

​Strokes - Per the American Heart Association/American Stroke Association (AHA/ASA). "Due to the sudden occurrence of a stroke, decisions are needed for the ongoing care and treatment of the patient. It is essential to work closely with a care planning team, who will create the most effective rehabilitative measures for loved one. There are currently a number of therapies that may be incorporated into such a plan." www.heart.org   &  www.stroke.org.  Stroke Family Warmline: 888-4-stroke. - M-F 8:30AM-5PM CST​

Fun Places for the Special Needs Adult

​Summer Camps
1. Mid-Hudson Valley Camp,
Esopus, NY 
maristbrotherscenter.org
1 week summer camp sessions, with different themes: Populations served: Children ages 4-15 with special needs,  young adults with special needs, adults with special needs, kids with cancer and related blood disorders, children with hearing impairments.

2. Camp Loyaltown
citizens-inc.org
Run by Citizens Options Unlimited
Located in Hunter, NY
Summer camp for adults (over 18) with developmental disabilities. 
One Week for children ages 5-17